This Blog is created to help educate and bring awareness to this new and debilitating and at times deadly disease. To share what living life is like with this illness, through the eyes of a six year old. This is Taylor Kenedee, aka BUGGY "BUG" our Granddaughter, to look at her you would see a normal healthy little girl, but this is far from the truth. She has JDM (Juvenile Dermatomyositis).
Monday, December 28, 2015
Friday, December 25, 2015
After effects of Chemo
Nana and Pops were going to take Buggy and Joe ( her brother) to a Christmas party and to see Santa. They both had been so excited as the day got closer...
Unfortunately for the Bug it also happened to fall on the day after her chemo injection....
This is part of the after effects...
She was so tired, cold, achy and just sat in my lap throughout the party.
She did go sit on Santa's lap for a moment...
She is not alone in this fight! There are thousands of other children suffering from this same illness... Please help us fight and win this battle against JM...
For more information please log onto
CureJM.org
Thank you and Merry Christmas
A Life with the Bu
These are little snippets to show how determined, brave and strong Buggy is.... Yes, there are good days with JM........ But the disease is still there, hiding, waiting on the sidelines to zap her energy, her strength, and her health.
To steal away opportunities to enjoy life to it's fullest. PLEASE help us find a CURE....Sunday, December 13, 2015
Visit with Santa
Buggy and her brother, Joe saw Santa today ...
So grateful Buggy's health has held up and she's been able to enjoy the holiday... Please continue your prayers for her and the many other children battling this disease. And for the families who lost the battle against JM, celebrating Christmas without their little warrior... My heart breaks for them.
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