This Blog is created to help educate and bring awareness to this new and debilitating and at times deadly disease. To share what living life is like with this illness, through the eyes of a six year old. This is Taylor Kenedee, aka BUGGY "BUG" our Granddaughter, to look at her you would see a normal healthy little girl, but this is far from the truth. She has JDM (Juvenile Dermatomyositis).
Tuesday, January 19, 2016
Saturday, January 16, 2016
Floridia sun, sand and surf
Buggy enjoyed the beach, had tons of fun...
However even with sun screen and her hat, the sun was too much for her,
The rash was horrible on her skin and her legs ( muscles) ached as though a punishment for enjoying her day.
She keep a stiff upper lip and soldiered on as the mighty little warrior she is.
Friday, January 15, 2016
Thursday, January 14, 2016
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