This Blog is created to help educate and bring awareness to this new and debilitating and at times deadly disease. To share what living life is like with this illness, through the eyes of a six year old. This is Taylor Kenedee, aka BUGGY "BUG" our Granddaughter, to look at her you would see a normal healthy little girl, but this is far from the truth. She has JDM (Juvenile Dermatomyositis).
Thursday, February 4, 2016
Headed to the Specialist
Tuesday, February 2, 2016
Relapse
Buggy is having a hard time since coming home from the JM convention
The rash has appeared once again on her face, she's having trouble with her neck muscles and leg mobility. She's been having trouble with "accidents" and complaining after voiding her bladder still feels like it has to go. We are fearful the disease is attacking her bladder muscles as well. She was scheduled to go for a follow up next week for bloodworm to check the status of her internal organs, the call has been made to her specialist and we wait to see what he wants to do... Please be praying for her and her family
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