This Blog is created to help educate and bring awareness to this new and debilitating and at times deadly disease. To share what living life is like with this illness, through the eyes of a six year old. This is Taylor Kenedee, aka BUGGY "BUG" our Granddaughter, to look at her you would see a normal healthy little girl, but this is far from the truth. She has JDM (Juvenile Dermatomyositis).
Tuesday, January 19, 2016
Saturday, January 16, 2016
Floridia sun, sand and surf
Buggy enjoyed the beach, had tons of fun...
However even with sun screen and her hat, the sun was too much for her,
The rash was horrible on her skin and her legs ( muscles) ached as though a punishment for enjoying her day.
She keep a stiff upper lip and soldiered on as the mighty little warrior she is.
Friday, January 15, 2016
Thursday, January 14, 2016
Monday, December 28, 2015
Friday, December 25, 2015
After effects of Chemo
Nana and Pops were going to take Buggy and Joe ( her brother) to a Christmas party and to see Santa. They both had been so excited as the day got closer...
Unfortunately for the Bug it also happened to fall on the day after her chemo injection....
This is part of the after effects...
She was so tired, cold, achy and just sat in my lap throughout the party.
She did go sit on Santa's lap for a moment...
She is not alone in this fight! There are thousands of other children suffering from this same illness... Please help us fight and win this battle against JM...
For more information please log onto
CureJM.org
Thank you and Merry Christmas
A Life with the Bu
These are little snippets to show how determined, brave and strong Buggy is.... Yes, there are good days with JM........ But the disease is still there, hiding, waiting on the sidelines to zap her energy, her strength, and her health.
To steal away opportunities to enjoy life to it's fullest. PLEASE help us find a CURE....
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